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Tips for living a full life with chronic health conditions |
National information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22)
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The goal of transition is to provide health care that is uninterrupted, coordinated, developmentally appropriate and psychologically sound prior to and throughout transfer into the adult system
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Promotes opportunities for young people and adults with any kind of disability in post-16 education, training and employment across the UK |
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Investigates how the core concepts of disability policy affect professional practice; and, in turn, how practice, especially in the form of partnerships among families, professionals, and agencies, affects families' quality of life |
Information from the National Center for Chronic Disease Prevention and Health Promotion
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Information from the National Institute of Arthritis and
Musculoskeletal and Skin Diseases
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Stories written by teens living with chronic illnesses
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Information on employment and benefits from the US Social Security Administration
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Dedicated to the development of projects that empower seriously ill children to combat the medical and emotional challenges they face on a daily basis. STARBRIGHT projects do more than educate or entertain: they address the core issues that accompany illness – the pain, fear, loneliness, and depression that can be as damaging as the sickness itself
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A place to share stories and information - for teens, by teens - with Crohn's Disease, Colitis, or IBS
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A national (UK) umbrella organisation working to ensure the best possible quality of life for children, young people and families affected by metabolic disease and alleviate their suffering with the ultimate aim of prevention and cure
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Services for brothers and sisters of children with special needs (disability and chronic illness)
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Health care for children and adolescents must be expanded to include more than management of their chronic condition and intercurrent acute illnesses. Pediatric care should also maximize children's functional abilities and sense of well-being, their health-related quality of life, and their development into healthy and productive adults
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Outlines the principles of planning for smooth transitions from one system to another
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A discussion of some of the psychological challenges
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Physical Health